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czwartek, 10 listopad 2011 00:00

Co mnie czeka :(

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Drodzy przyjaciele 4 kwietnia 2012 roku przeszłam pierwszą i najważniejszą operację główki. Operacja odbyła się w najlepszej dziecięcej klinice w Monachium.

Oczywiście było to możliwe dzięki Waszej ogromnej pomocy.

Moje operacje przeprowadza lekarz, który od 15 lat operuje już dzieci z Zespołem Aperta. Koszt dwóch operacji główki to ok 30 tysięcy euro.

Podczas pierwszej operacji lekarz wymodelował przednią część mojej czaszki, rozciął zrośnięte nieprawidłowo szwy czaszkowe, a także po obu stronach mojej główki umieścił specjalne dystraktory (śruby), które połączył z kością śródtwarzy.

Przy pomocy tych dystraktorów moje kości były wypychane przez 3 tygodnie.

Z metalowymi śrubami w główce wróciłam do domu. Po dwóch miesiącach ponownie wróciłam do Monachium, gdzie mój zaufany Doktorek wykonał 25 lipca 2012 roku drugiej operacji. Usunął z mojej główki dystraktory, a także wymodelował kości czoła.

Po paru dniach 2 sierpnia ze względu na wzmożone ciśnienie w mojej główce, poddana zostałam kolejnej narkozie i kolejenej operacji. Do mojej główki wstawiono zbiornik Ommaya. To taki specjalny zbiorniczek za pomocą którego można odciągnął nadmiar płynu z główki.

Na chwilę obecną nie ma zaplanowanych operacji na mojej głowie i oby tak pozostało jak najdłużej:)

Teraz zabraliśmy się za rozdzielanie moich paluszków u rączek.

Dzięki Wam kochani i waszym dobrym serduszkom, mogę planować kolejne operacje bez zmartwień o ogromne koszty. Każda z operacji to koszt ok 6 tysięcy euro.

Rodzice zdecydowali, że moimi rączkami rónież zajmie się Doktor Gernet.

Mój zrośnięty kciuk udało się już uwolnić w lipcu 2012 roku podczas drugiej operacji główki.

Pierwsza poważna operacja rozdzielania moich paluszków odbyła się 20 lutego 2013 roku. Oczywiście wszystko się udało i dzisiaj już mogę cieszyć się pięknymi paluszkami w lewej ręce.

12 czerwca 2013 roku odbyła się kolejna operacjia rozdzielania paluszków. Tym razem w prawej rączce.

Przede mną jeszcze minimum 3 operacje. Moje palce środkowe są dosyć poważnie zrośnięte z serdecznymi, co będzie wymagało założenia specjalnych dystraktorów, które pomogą rozdzielić paluszki, ale to wszystko dopiero za parę miesięcy....


Cały czas jestem pod opeiką wileu specjalistów, lekarzy oraz regularnie uczęszczam na rehabilitację.

Dzięki Wam mogę być pewna, że moi rodzice mogą zapewnić mi nalepszą opiekę i oddać mnie w ręce nalepszych lekarzy.

 

Dziękuję Wam, że nas wspieracie i jesteście ze mną przez cały czas:)

 

Trudne decyzje musisz podjąć sam.
I nie myśl, że ktoś zrobi to za Ciebie...

Bo dokonując wyborów możesz zmieniać bieg rzeki, którą jest Twoje życie.

Czytany 832727 razy

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